Dry Run

First, thank you to everyone keeping our little pumpkin in their thoughts. We realy appreciate them.

So Nyx's surgery was canceled...at the last minute. They had an influx of emergency admits to the CVICU so the surgeons on staff had to clear out patients deemed "stable" enough to wait a week or two or three. After Nyx suffered through all that invasive and traumatic testing, they bumped us and sent us packing.

I am unbelievably frustrated. Knowing that Nyx has to go through all of this again in such a short time kills me. The look on her sweet little face was heartbreaking. She so doesn't understand why the hell Dave and I are letting people do all of these things to her. It's so hard to see her suffer.

My parents are out a crap load of money too. They not only drove eight or nine hours to get to Houston but they parked their camper at a site serving the medical center. There are lots of wives and husbands of MD Anderson patients living there. Mom and Dad had reserved the site for two weeks so they could help us out at the hospital and the park has a no refund policy so yeah.

Oh, and during all that testing, the docs discovered yet another fucking defect in Nyx's heart. She has an ASD too. That's a hole between the upper chambers of her heart. Her pulmonary arteries aren't growing either.

Let's tally that up, shall we? Hole between bottom chambers of heart. Hole between upper chambers of heart. Right ventricle too thick. Pulmonary valve doesn't work. Pulmonary arteries aren't growing. Pulmonary stenosis still profound. Coronary artery in wrong place. Extra vessels branching off heart.

I will be so glad when this is all over and Nyx is healthy and happy. But Dr. Fraser did warn us we could be back for another procedure before the kiddo starts kindergarten if that right ventricle gets thick again. :(