Tuesday, January 12, 2010

And The Countdown Begins

First things first. A new year, a new look. The new layout is a work in progress so things might change over the next few days.

Secondly, Dr. Fraser's office called yesterday to schedule the kiddo's open heart surgery. We head down to Houston on the 16th of February for a detailed echo (Nyx will be sedated for it) and a meeting with one of the staff cardiologists. On the 17th, Nyx will be admitted to the 15th floor (cardiac ward) and undergo all of her pre-op tests and procedures. She'll be wheeled into surgery early on the morning of the 18th.

After her open heart procedure, Nyx will spend 7-10 days in the CVICU, Cardiac Step Down, and then just the cardiac floor. We will likely spend another week in Houston after her discharge from TCH.

Dave will probably go back to work once Nyx is out of the CVICU. It's not really a money issue but more Dave's nerves. He's impossible to be around when he's stuck in one place for too long, especially some place as busy as a hospital. No, really. He gets all grumpy and grrr. It's definitely one of those "Don't Poke the Bear" issues.

I'll be at TCH from February 17th through Nyx's discharge and then a further week in Houston somewhere. (We're working out the details.) By the time the kiddo is on the 15th floor for Step Down, we'll have a private room so I won't have to worry about safety and such. Dave will be with me when we're doing the daily shuffle between the Ronald McDonald House or the 17th floor waiting room.

Mom and Dad have rented a space for their camper at one of the upscale RV parks serving families seeking treatment in the Texas Medical Center. Dad will have to head back to New Mexico after a few days but Mom will stay from the 16th of February through the 28th. Where she'll go after that is still up in the air. Probably our house since she's offered to stay with us once the kiddo is released from the hospital and is able to come home. We'll definitely need the help.

Layna is such a sweetheart! She's agreed to look after Bosley. Actually, strike that. She's a saint. Bosley can be such a turd. Only a saint would take him on. Layna didn't even hesitate when I asked. Best Friend of the Year Award Nominee? Uh, yeah.

So anywho. Dave and I are nervous and stressed but we're trying to be positive. Soon Nyx will have a fixed ticker. Barring the need for a pacemaker or another valve replacement, she shouldn't need another surgery for at least, oh, ten years or so. Maybe more.

Because the 16th is the last night we'll have our little family together with any sort of privacy, Dave and I chose to splurge and reserve a nice suite in a downtown Houston hotel. It will be nice to have Nyx to ourselves for that night because for the following two weeks, we'll have to share her with nurses and doctors and surgeons. It'll also be the last night Dave and I will be able to sleep in a real bed for weeks. Might as sleep in style, eh?

4 comments:

As You Wish said...

Thinking of you all... I'm so excited to "hear" the lift in your writing voice now that this is scheduled and planned. I can tell that is a bit of a relief to you heart and mind.

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Anonymous said...

Easily I agree but I about the post should have more info then it has.