An Early Christmas Gift

So Nyx had a cardiologist appointment on Wednesday and it went really well. She weighs a little over 10 pounds now. She's gained 4 pounds in 3 months. Not bad considering her broken heart, three weeks in the hospital and whacked out metabolism. Her O2 sats have leveled out and seem to only dip down to the 70s and 80s when she's crying. She does get a little winded when she's playing but that's normal for now. As long as there are no changes, she'll have surgery in late February or early March.

Dave and I were so relieved to hear this. We postponed decorating and gift buying because we weren't sure whether or not Nyx would spend her first Christmas in the hospital. We'll bust out the Christmas tree and lights later today. Gifts are on their way too.

The only snag in our holiday is the upcoming insurance changeover. Nyx's next dose of Synagis won't ship out until the 7th of January...but we won't have approval from our new insurance company yet. Yep. You guessed it. She won't get the injection in time--if at all. (It has to be spaced every 28 days to be effective.) Also we won't have hit our deductible yet so we'll be expected to pay for the entire $3000 dollars for the injection unless our new company covers Synagis differently than the old one.

Head. Desk.

I've tried multiple times to get a straight answer from Dave's HR rep but it's proving to be an exercise in futility. It took three weeks or so just to get a response. We were told to check out the prescription list but that was a complete waste of time because Synagis is one of those special category meds so it's not on the list. I can't call the company directly because we don't have the group plan number. I don't have the group plan number because someone doesn't respond in a timely manner. And so on and so forth.

Thank goodness it's the holidays. I'm feeling a bit charitable so I haven't lost my shit on anyone.

Yet.