Well. Sort of. Nyx had her post-op studies done. We had two opinions on them, those of her cardiologist and one of his colleagues. Her heart looks good. The fluid pocket has disappeared. She has no rhythm problems and the right ventricle seems to have relaxed some.
Unfortunately there is nothing left of her pulmonary valve. This isn't all that surprising. Her valve was in such bad shape there wasn't much that could be done to save it. For now the lack of a valve isn't too concerning. She'll be okay for, oh, another ten years at least. After that she'll need another open heart procedure to replace the valve.
In the short-term, we're more worried about the arteries feeding her lungs. They are just so small. If they don't grow within the next twelve months, we'll be back at TCH for a cath procedure. Fingers crossed those little buggers grow!
1 comment:
Hi. We're strangers and I don't even remember how I happened upon your blog. But when I realized it was about a sick baby, I had to read it and wish you well and hope the baby recovers quickly and completely. My baby was a baby 47 years ago, but one grandchild had bowel surgery as a baby and another was born with a severe club foot. So I can relate so much with your anxiety and feelings of anger and frustration. All the best to you all from a stranger who will be thinking about you and your baby.
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